From the beginning

I have decide to do this blog because when I was going through the process of talking to drs before the pregnancy and even after I got pregnant I was constantly told that I was the only one. That kidney patients dont get pregnant and my drs had no idea how to handle the situation. I had never felt so alone in my life.
I looked for others in my situation and was coming up empty every time. Then I was told about the posibility of a very early delivery and I decided to join the March Of Dimes facebook page and came across someone else who went through it. And who delivered early and succesful. So for the first time I felt hope and that person has really been a blessing for me. I wanted to make sure no one else ever had to feel how I felt. And now hopefully with this out there no one will have to.



I was diagnosed in 2003 with Minimal Change kidney disease while pregnant with my first daughter Jordan. Due to toxemia and pre-eclampsia in my pregnancy the doctors scheduled me for a biopsy of my kidneys after my daughter was delivered.
I was treated with in my opinion are some of the worst medicines out there. I was on Prednisone for months. I do not remember how long but I know it was almost a year if not longer and the only result from that was a 60-80lbs weight gain. I was miserable and none of my kidney test ever came back any different. My doctor then put me on cytoxin which is a form of chemotherapy in a pill form. I was promised to not have any side effects of chemo and ended up losing my hair. Well most of it. Enough that my aunt took me wig shopping. It was horrible. I was depressed and never wanted to leave my house because of the results of these 2 medicines. In 2005 my then husband got orders to England UK. So I called my kidney dr and told him I was stopping all the medications. My labs had never came back any different so neither of these medicines had any positive effect in the almost 2 years I was on them. I was fed up and done feeling like his guinea pig. 
2006 England UK my primary care dr. sent me to a hospital in Cambridge to a kidney specialist. They ran a bunch of test and my kidney function had improved a little since being there and being off all the medicines. That was the last time I had any follow through with my kidney doctors until 2010.