Not all this again

In June 2009 I got engaged to the most wonderful, caring, handsome man in the world. We were planning our wedding for 2010-2011. We talked a lot about having a baby and expanding our family and decided to get some consults from drs to see how safe and successful it could be for us. So I bit the bullet and called my kidney dr from years ago becuase I knew he would remember me and would already be familiar with my situation. We met with him and I was still as apprehensive about him as always. I asked for another biopsy and he said since it had been over 5 years that that was probably a great idea. I was hoping in the back of my mind that nothing had changed. I wanted the same diagnosis as before Minimal Change kidney disease, because from what I had learned about that was it was exactly what is says it is, Minimal Change.  But of course my luck isnt usually on my side and I seem to be prone to bad news so the new diagnosis came back that I had now developed FSGS or Focal segmental glomerulosclerosis which is scarring of the kidneys. And unfortunantly the scarring part is failed. So over time 50 percent of patients with this disease will need a transplant and there is no cure at this time.
My genius doctor who made years of my life miserable for no reason and who very well could have misdiagnosed me years ago discussed pregnancy with me. He said he did not thing pregnancy would complicate my kidneys any further or make things any worse on them. However he also stated he had never had a patient as young as me. And he had been in this practice for 20 + years. Also this genius had never had a pregnant patient. But hearing him give me the okay I took that as a yes and didnt pay any attention to the fact that he probably wasnt qualified to give me an okay or not due to his lack of experience. We wanted a baby and his answers were good enough for us at that time.
We followed through with a consult from a high risk OB dr who said because of the kidney disease and oh yea I developed a blood clot in my lung in 2004 that it wasnt a good idea to get pregnant. His main concern was the blood clot and I knew there was blood thinners safe during pregnancy so I wasnt concerned about that. Basically if the kidney dr said ok then it was something we could try and would just be monitored very closely.  So with an ok from the kidney dr and a we'll you're going to do it anyway (more or less) we had hope that we would be able to do this and do it safetly under close supervision of many specialist.
We were married in August of 2010 and went in September 2010 for our final pre pregnancy consult with of course another OB. We figured the more opinion we had the more likely to get the go ahead. This dr seemed very positive about us being able to do this pregnancy even with my history. So out came the birth control that day. October 2010 I got my first positive pregnancy test. Now this is when it all really starts...